Who We Are
We are ChILD EU CRC, a research group dedicated to supporting children with interstitial lung disease. Our website address is https:/www.crc-childeu.com
Purpose of This Policy
This policy outlines how we collect, use, store, and protect personal data in compliance with the UK General Data Protection Regulation (UK GDPR) and the Children’s Code.
Data We Collect
We may collect and process the following personal data:
- Personal Identification Information: Name and contact information on those who use the Contact Form system.
- Technical Data: IP address and browser user agent string to help with spam detection.
How We Collect Data
- Direct Interactions: Through consent forms and contact forms on our website.
- Automated Technologies: As you interact with our website, we may automatically collect technical data about your equipment, browsing actions, and patterns.
How We Use Your Data
We use the collected data to:
- Process and manage consent forms.
- Respond to inquiries or requests submitted via our contact forms.
- Improve our website and services through analysis of user interactions.
Legal Basis for Processing
Our legal bases for processing personal data include:
- Legitimate Interests: To analyse and improve our services and connect with other chILD interested parties, from clinicians and researchers, to patient groups, to individuals.
Data Sharing
We do not share personal data with third parties unless required by law or with explicit consent.
Data Security
We implement appropriate security measures to prevent unauthorised access, alteration, disclosure, or destruction of your personal data.
Data Retention
We retain personal data only for as long as necessary to fulfill the purposes we collected it for, including satisfying any legal, accounting, or reporting requirements.
Your Data Protection Rights
Under data protection laws, you have rights including:
- Access: Request copies of your personal data.
- Rectification: Request correction of inaccurate or incomplete data.
- Erasure: Request deletion of your personal data under certain conditions.
- Restriction: Request restriction of processing under certain conditions.
- Objection: Object to processing under certain conditions.
To exercise any of these rights, please use the Contact Form with your information so we can trace any communications.
International Data Transfers
We do not transfer your personal data outside the UK or European Economic Area (EEA).
Changes to This Policy
We may update this privacy policy from time to time. Any changes will be posted on this page with an updated revision date.
Contact Us
If you have any questions or concerns about this privacy policy or our data practices, please contact: nadia.nathan@aphp.fr (CRC Chair).